A brief update on life, because otherwise I’m still struggling to get words written.
My youngest is now walking independently. At the recommendation of his Physiotherapist, we had an ankle brace made for him. It fits under his foot and rests just below his knee, and it’s a semi-rigid brace. The introduction of the brace led to immediate improvements in his quality of life: he started to walk outside of the house, and he changed the way he comes down the stairs (prior to brace, he backed down the stairs, one step at a time).
After a week of experimentation with outside walking, he started to venture out on his own. He’s always gone for walks during the day, and he wants – of course he does – to return to normal life, or as much of normal life as is currently possible. He still can’t use his left hand, although there are improvements in his arm and shoulder strength (which, apparently, is necessary and leads to left hand functionality).
Daily life still revolves around my youngest, but I have gone back to work at the store, and I have been trying to write. It’s frustrating for me because it is so slow in comparison to before the medical emergency. I’m also aware that my writer brain and my worry brain are attached at the hip, and even if I don’t make my worry my son’s problem, it’s… still very loud on the inside of my head =/.
But things are definitely improving. The Bridgepoint PT has been amazed at the progress between the first session with my son and the most recent one. He had heard of the brace maker, but he hadn’t had any actual experience with it until my son, and I think he thinks it’s miraculous.
To be fair, so do we.
As we head into summer and summer heat and the round of more follow-up visits with hospital doctors, we remain optimistic, or as optimistic as someone with a writer brain can be.
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Glad to hear it!